Charity Search / NEUROFIBROMATOSIS INC
Medical Research (H30Z) IRS Verified DX Registered 990 on File

NEUROFIBROMATOSIS INC

EIN: 04-3030760 · WHEATON, IL 60187-5442 · United States · FY 2024 Data
5 out of 5 86 / 100 Based on 2+ years of filings
Financial strength (30%) 91/100
Reliability (20%) 84/100
Effectiveness (25%) 93/100
Impact (25%) 75/100
Financial data: FY 2024 · Scored 9/13/2026
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NEUROFIBROMATOSIS INC logo
47
CharityAI™ Score
out of 100
Mission Statement

Is to find treatments and a cure for neurofibromatosis by promoting scientific research, improving clinical care, providing outreach through education and awareness, while offering hope and support to those affected by NF.

Financial Overview — FY 2024
N/A
Total Revenue
N/A
Total Expenses
N/A
Net Assets
5
Employees
Program Expense Ratio N/A
Fundraising Efficiency 0.0%
Operating Reserve N/A
Liability-to-Asset 0.0%
Revenue Diversification N/A
Compared with Peers
FY 2024
Compared with 726 similar organizations (United States, Medical Research, $100K–$1M in expenses), FY 2024.
This organization Middle half of peers (P25–P75) Peer median
Ratio This org Peer median Position (P10 → P90)
Fundraising efficiency
Fundraising expenses / gross fundraising income · lower is better
0.0% 10.0%
P10P90
Top quarter
Liabilities to assets
Total liabilities / total assets · lower is better
0.0% 0.4%
P10P90
Top quarter
Revenue growth
Year over year revenue growth
-100.0% 9.1%
P10P90
Expense growth
Year over year expense growth
-100.0% 8.8%
P10P90
CharityAI™ Evaluation — 2025
47 / 100
0
Financial
84
Reliability
45
Effectiveness
75
Impact
Financial Strength (30%) 0
Reliability & Transparency (20%) 84
Program Effectiveness (25%) 45
Impact & Outcomes (25%) 75

2,400 served annually $36 per beneficiary 2 programs

IRS Verified Form 990 on File 95% Data Complete
Impact
2 programs
Outcome / Program People Served Cost / Service # Completed Duration
neurofibromatosis patient education resources 1,200 $30.00 — Lifetime
neurofibromatosis medical specialist referral 1,200 $41.66 — Lifetime
Financial History
Year Revenue Expenses Net Assets Program % Staff
2024 N/A N/A N/A — 5
2023 $410K $488K $1.2M 84.9% 5
2022 $549K $378K $1.2M 84.6% 5
2021 $683K $316K N/A — 3
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Organization Details
EIN
04-3030760
State
IL
City
WHEATON
ZIP
60187-5442
Classification
H30Z
Category
Medical Research
Rating
5★
Coverage
A
Last Updated
Aug 2026
IRS Ruling Year
1988
Foundation Code
15
Form 990
On File
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