Medical Research (H110) IRS Verified DX Registered 990 on File

FAMILIAL DYSAUTONOMIA NOW FOUNDATION

EIN: 26-3531031 · BUFFALO GROVE, IL 60089-1144 · United States · FY 2025 Data

3 out of 5 54 / 100 Based on 2+ years of filings

Financial strength (30%) 82/100

Reliability (20%) 50/100

Effectiveness (25%) 78/100

Impact (25%) No data yet

Financial data: FY 2025 · Scored 9/13/2026

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CharityAI™ Score

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Mission Statement

Our Vision To ensure that those with FD will enjoy long, healthy, productive lives. Our Mission To discover new treatments and cures for patients with FD. Our Goals To deliver safe, effective treatments to the FD community by funding the fast-track research at the Laboratory for Familial Dysautonomia Research at Fordham University in New York, USA. To provide support to and advocacy for FD families and promote education and awareness to the medical community and public.

Financial Overview — FY 2025

$289K

Total Revenue

$234K

Total Expenses

$1.1M

Net Assets

Employees

Revenue Sources

Expense Breakdown

Program Expense Ratio 93.2%

Fundraising Efficiency 0.0%

Operating Reserve 58.79x

Liability-to-Asset 0.0%

Revenue Diversification 84.7%

Compared with Peers

FY 2025

Compared with 370 similar organizations (United States, Medical Research, $100K–$1M in expenses), FY 2025.

This organization Middle half of peers (P25–P75) Peer median

Ratio	This org	Peer median	Position (P10 → P90)
Program expense ratio Program expenses / total expenses · higher is better	93.2%	83.6%	P10P90	Above median
Admin expense ratio Management and general / total expenses · lower is better	6.8%	10.6%	P10P90	Above median
Fundraising expense ratio Fundraising expenses / total expenses · lower is better	0.0%	0.0%	P10P90	Top quarter
Fundraising efficiency Fundraising expenses / gross fundraising income · lower is better	0.0%	16.4%	P10P90	Top quarter
Operating reserve Months of expenses covered by net assets · higher is better	58.8 mo	12.3 mo	P10P90	Top quarter
Liabilities to assets Total liabilities / total assets · lower is better	0.0%	0.1%	P10P90	Top quarter
Revenue concentration Share of revenue from the largest source · lower is better	84.7%	91.9%	P10P90	Above median
Revenue growth Year over year revenue growth	-3.3%	4.5%	P10P90
Expense growth Year over year expense growth	-0.5%	6.7%	P10P90
Surplus margin Surplus as a share of revenue	19.1%	-1.1%	P10P90

Financial History

Year	Revenue	Expenses	Net Assets	Program %
2025	$289K	$234K	$1.1M	93.2%
2024	$299K	$235K	$1.1M	80.3%
2023	$364K	$227K	$1.0M	80.1%
2022	$293K	$226K	$882K	80.4%

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Organization Details

EIN: 26-3531031
State: IL
City: BUFFALO GROVE
ZIP: 60089-1144
Classification: H110
Category: Medical Research
Rating: 3★
Coverage: A
Last Updated: Aug 2026
IRS Ruling Year: 2008
Foundation Code: 15
Form 990: On File

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CharityAI™ rates charities from 0 to 100 using public filings (IRS Form 990 and the equivalent registries outside the US) together with the information the charity itself provides on DonationX. Ratings are recalculated every quarter, without human bias, and shown as stars.

Four pillars

Financial strength30%

Program expense ratio, fundraising efficiency, operating reserves, liabilities and revenue diversification, compared with similar organizations.

Reliability20%

Standing with the registry, filing history, verification and how complete the profile is.

Effectiveness25%

How much goes to programs and how consistently the organization delivers them.

Impact25%

The outcomes the charity reports on DonationX: people served, cost per service and results.

Stars

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